Celebrity Waiters...
I was glad to get to spend the day with other CF families. It was nice to get to spend time with my friend, Sarah Kaupp, who also has a 3 year old daughter (Sarhea) who was born with CF. Sarah is an amazing person and I am so glad to know her! We met because of our girls, and the sad thing is, they can't ever be around each other. My hope is that they will find a cure and save all of these precious lives and Hailey and Sarhea will finally be able to have play dates together!
I was also able to finally meet Justin and Andi Reno. I first heard about the Reno's on the news, when they lost their beautiful daughter, Anna, to this horrible disease. My heart broke for them when I finally was able to make myself watch the video that was aired on Channel 19, and my heart still breaks for them now. I can't even begin to imagine what they have and are still going through every single day. While talking with them yesterday, even for a brief time, I could see how strong they were. They shared some tips and advice on Hailey's g-tube (if she ends up with one) and they also shared some memories about Anna. They have to be without a doubt, some of the strongest people I have ever had the pleasure of meeting.
I also met Wes Needham. Who is 25 and living with CF. He is an inspiration and gives me so much hope for Hailey's future! He is very successful and didn't let CF stop him from making his dreams a reality. He graduated from UC with 2 degrees and now works for Duke Energy as an Electrical Engineer. Very glad to have met him and his parents!
Thank you so much to EVERYONE who came, donated, and volunteered to make the event possible!!!!
www.sarheasunshine.com
www.annas-army.com
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