Hailey's last bronchoscopy was on November 2....her lungs were clear!! YAY!! But since then, she has developed a very wet sounding cough. I'm trying not to get too paranoid. Her first bronch was on August 31st and her lungs were so bad that we were admitted right away. We stayed in the hospital for 2 weeks while she was getting IV antibiotics through her picc line. I just do not want another hospital stay!!! She is narrowly avoiding a g-tube right now. I'm hoping that her weight keeps going up and that she will not have to have one at all!
Some days, I feel like we are doing ok. Other days, I don't even know how to start the day. I feel so stressed out about everything! I hate this disease and what it is doing to my baby girl and our family. I try to stay positive, but sometimes it's hard to do. Knowing what we're up against with this disease is tearing me apart inside.
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